At first we were told there was nothing we could do with his hips. That he was too old to have them put back into the sockets. This may be true, but we are also thinking that we should get a few more opinions. I have been
We feel at this point we owe it to Bryson to see what more can be done for him and not just settle for nothing can be done. If we do nothing we know that not only will he not walk very well, probably never run, and will definitely need hip replacements down the line. But more riveting is finding out his spine will start curving and will end up in a "c" shape if we do nothing. His left hip, the femur is shoved up and out and the right hip is shoved down and out. This is creating about a 2" discrepancy in leg lengths. You can literally hold the head of his left femur in your hand.
If they can do surgery, it is a horrific operation and then you spend a minimum of 16 weeks in basically a body cast. We can not imagine doing this to him after everything he has been through. It feels like a darned if you do and darned if you don't scenario. We just want Bryson to have the best and fullest life possible, not just now as a kid but as an adult.
So our goal over the next two months is to have him seen by three of these doctors( in Sacramento, San Francisco and San Diego), get each of their opinions and then go forward with what would be best for Mr. B. Please pray for wisdom and direction on what to do.
As for now, Bryson is bearing some weight on his feet. He can hold onto the couch and walk the length of the couch holding on. He is not standing unsupported yet. We hope to get him a walker in the next few weeks. He is going back to Shriners tomorrow to look at his braces. They are causing a pressure sore on his leg and seem to be allowing his feet to turn in a little bit- and mama wants NO bit!
I need to get on video Bryson's pure joy that randomly hits him throughout the day. Several times each day he gets so excited and says, "Bryson no more castadees. Bryson so happy. Mama and Papa fix feet!" It is beyond precious! Wouldn't it be wonderful if someday he can say, "Bryson no more castadees. Bryson so happy. Mama and papa fix hips!"