Thursday, June 25, 2009
Another Convincing Opinion!!!!
Can't even wrap my brain around the dr appt today to get a good post out, but know many of you are waiting to hear the outcome of today's visit. He came right out and said he would never operate on Bryson's hips. He gave us some pretty convincing reasons mostly that is spelled arthrogryposis! Basically, he said he can fix the hip dysplasia and make his hips look great on xrays, but he will never be able to fix the arthrogryposis which is the source for the hip dysplasia to begin with.
He is going to talk with an internationally renowned doctor of arthrogryposis and hip dysplasia for us about Bryson. He is going to confer with our St Louis doctor as well. He is getting us medical journals that reinforce his theory on leaving Bryson's hips as is. It is basically our decision to do it or not, but as he said we have no time to waste. In fact, by the end of this year it is too late. He will support us post op, if we decide to do surgery such as cast changes or whatever so we don't have to travel back and forth to St Louis. He was graciously offering us any assistance even if we don't take his opinion. He was very nice and spent ALOT of time with us.
He firmly does not believe that Bryson's quality of life will be any better with his hips in their sockets. In fact, he says there is a better chance it could be worse off. He does not believe we can even hit a home run with Bryson, maybe a double.
He also put it very nicely that Bryson will never walk or be like us physically with his hips in or out due to the arthrogryposis. He will always have to adapt to navigate his way through life. He did say that he will amaze us with what he will be able to do and once again told us how brilliant Bryson will be. (We already know that!)
We will continue to pray, to gather additional information, pray, talk to our doctors, pray and then Robert and I will be forced to make what we feel is the best decision for our son.